A specific treatment plan for TSC will be determined by your child's physician based on:
- Your child's age, overall health, and medical history
- The type of condition
- The extent of the condition
- Your child's tolerance for specific medications, procedures, or therapies
- Expectations for the course of the condition
- Your opinion or preference
Because TSC is a lifelong condition that is not curable, the focus is on medically managing the symptoms and providing ongoing surveillance monitoring for involvement of the many organ systems affected by this disease.
Each child is treated by a multidisciplinary team that may include professionals from a variety of support services, including:
Managing the symptoms of TSC includes focusing on preventing or minimizing disabilities and maximizing your child's capabilities at home and in the community. The support of our neurosurgeons may be needed to remove epileptic tubers in the brain if they cause seizures, or on rare occasions to remove tumors called SEGAs (subependymal giant cell astrocytomas) if they are enlarging and not responding to medical treatment.
The full extent of the disease may be revealed as your child grows and develops. Genetic counseling may be recommended by the physician to provide information about the risk of recurrence of these disorders and any available testing.
