Family Support
The Down Syndrome Center of Western Pennsylvania:
- Provides information about Down syndrome to new families
- Refers families to support groups for parents and siblings
- Offers support to families of children who are recuperating from illness or surgery at UPMC Children's Hospital of Pittsburgh
- Assists families caring for a child, adolescent or adult with Down syndrome in locating medical, educational, recreational, social, and other resources in their communities
Clinical Services
Clinical services using a preventive approach are available. These services include:
- Comprehensive medical assessments and care coordination for children and adolescents
- Referrals to sub-specialists who have expertise in meeting the needs of people with Down syndrome
- Adult specialty medical assessments provided by an internist who specializes in the care of adults with Down syndrome
Resources and Information
The Down Syndrome Center of Western Pennsylvania:
- Has a lending library of books, periodicals, and DVDs
- Provides current information about Down syndrome to families and professionals
- Maintains a file of articles on issues relating to Down syndrome
Professional Training
The Down Syndrome Center of Western Pennsylvania at UPMC Children's Hospital of Pittsburgh practices a unique, comprehensive approach to care. The center provides training for pediatric and medical/pediatric residents, genetic counselors, and physical therapy students.
Research
The Down Syndrome Center collaborates with the Down Syndrome Medical Interest Group, the National Down Syndrome Society, and the National Down Syndrome Congress to investigate the clinical problems experienced by individuals with Down syndrome.
We are currently participating in a study for adults with Down syndrome.
