Cleft-Craniofacial Center Resources

We’ve compiled the resources below to help parents and guardians and their children better understand cleft-craniofacial conditions and procedures.

Genetics Resources

• Cleftline: Genetics and You by the Cleft Palate Foundation © (PDF)

Feeding Resources

• Feeding an Infant with a Cleft Lip or Palate - General feeding suggestions for success and more information on specialty bottle types.
• ACPA Family Resources: Feeding Your Baby Booklet © (PDF)
• Cleft Bottle Ordering Information (PDF)
• Feeding Options for Patients with Cleft Lip and Palate (PDF)
• Pidgeon Cleft Palate Nipple System Fact Sheet by Philips (PDF)
• Medela Special Needs® Feeder Instructions for Use (PDF)
• Dr. Brown’s Specialty Feeding System Instructions (PDF)

Post-Surgery Resources

• A Guide to Your Child's Diet After Surgery (PDF) - Information about the staged diet your child should follow to promote healing after surgery. Includes examples for each stage, a recipe guide, and more.

General Information

• About Face - A Canadian organization that provides emotional, peer and social support, resources and educational programs to individuals of all ages with facial differences (and their families). They seek to increase public understanding and acceptance of people living with facial differences through public awareness.
• American Cleft Palate-Craniofacial Association (ACPA) - An international nonprofit medical society of healthcare professionals who treat and/or perform research on birth defects of the head and face.
• American Society of Plastic Surgeons (ASPS) - The ASPS offers information about cleft lip and cleft palate repairs.
• Children's Craniofacial Association (CCA) - The CCA empowers and gives hope to individuals and families affected by facial differences.
• FACES: The National Craniofacial Association - FACES: The National Craniofacial Association assists children and adults who have craniofacial disorders resulting from disease, accident, or birth.
• March of Dimes - An international organization that works to prevent birth defects, premature birth, and infant mortality and to support expectant and new parents.